Epilepsy: Invisibility & Stigma

November 15, 2022
Epilepsy: Invisibility & Stigma

What is “stigma”?  The dictionary definition is:  a mark of disgrace associated with a particular circumstance, quality, or person: the                     stigma of having gone to prison will always be with me This definition gives me pause. Disgraced? To be a person with epilepsy is, too often, to experience stigma. To feel different, somehow … Read More

Deep Teacher-Shadow Teacher

May 18, 2022

Poet and spiritual advisor Mark Nepo refers to fear, pain, and grief as “deep teachers.” For me, these are my “shadow teachers,” as having epilepsy employs all of them. Living with any disability employs all of them–fear, pain, grief–at some point or points. Repeatedly.   I took the opportunity during my acceptance speech at the … Read More